Precision Medicine for All: Ensuring Diversity in Participants and in Practice
September 29, 2016
Tinkham Veale University Center, Ballroom A
8:00 – 8:30 Registration and Breakfast
8:30 – 8:40 Welcome and Introduction
Dana Crawford, PhD, Associate Professor
Department of Epidemiology and Biostatistics
Institute for Computational Biology
Case Western Reserve University
8:45 – 9:30 The need for biomedical research in diverse populations
Esteban Burchard, MD, MPH, Professor
School of Pharmacy
University of California San Francisco
9:30 – 10:15 Public attitudes towards the use of genetic research to address health disparities
Aaron Goldenberg, PhD, Associate Professor
Department of Bioethics
Associate Director, Center for Genetic Research Ethics and Law
Case Western Reserve University
10:15 – 10:30 Break (15 min)
10:30 – 11:15 Outreach and experiences in Cleveland participation and retention in research (foodNest)
Darcy Freedman, PhD, Associate Professor
Department of Epidemiology and Biostatistics
Jack, Joseph, and Morton Mandel School for Applied Social Sciences
Core faculty, Prevention Research Center for Health Neighborhoods
Case Western Reserve University
11:15 – Noon Biorepositories, data collection, and data analysis in US territories
Jacob McCauley, PhD, Associate Professor
Departments of Human Genetics and Pathology
Associate Director, Center for Genome Technology
John P. Hussman Institute for Human Genomics
University of Miami
Noon – 1:30pm Lunch and poster session
Immunosequencing: Unveiling New Molecular Biomarkers to Guide Precision Medicine
Patrick Raber, PhD
Adaptive Biotechnologies
1:30pm – 2:15pm Genetic ancestry and precision medicine
Timothy Thornton, PhD, Associate Professor
Department of Biostatistics
University of Washington
2:15pm – 3:00pm Use of electronic health records in Cleveland for diverse precision medicine research enrollment
David Kaelber, MD, PhD
Chief Medical Informatics Officer and Vice-President of Health Informatics
The MetroHealth System
3:00pm-3:15pm Break
3:15-4:00pm Pharmacogenomics (and its challenges) in diverse populations
Minoli Perera, PharmD, PhD, Associate Professor
Department of Pharmacology and Center for Pharmacogenomics
Feinberg School of Medicine
Northwestern University
4-4:45pm Biobanking and research from the participants’ (and their families’) perspectives
The Lacks Family
Veronica Robinson and Shirley Lacks, great-granddaughter and daughter-in-law of Henrietta Lacks.
The invitation of the Lacks family was made possible, in part, by a grant from the Nord Family Foundation through CWRU’s UCITE Nord Grant, the CWRU Cell and Molecular Biology Training Program (T32 GM008056-34), and the CWRU Department of Bioethics.
5pm Thank you and adjourn
Reception
Smith Commons, 1st floor Tinkham Veale University Center