Dr. Lucia Hindorff of the National Human Genome Research Institute (NHGRI) and I are excited to announce a new call for manuscripts that highlight diversity in genetics and genomics. This call for manuscripts known as “Celebrating the Breadth of Diversity in Human Genomics” is organized as a special Research Topic with the journal Frontiers in […]
It’s official—the All of Us Research Program launched on May 6, 2018. For those of you unfamiliar with the All of Us Research Program, formerly known as the Precision Medicine Initiative Cohort Program, it is an ambitious effort to recruit at least one million participants in the the United States for precision medicine research. Recruitment […]
The consensus is clear: there is a need for diversity in precision medicine research. Most of the current dialogue on diversity centers on study populations. Genome-wide association studies (GWAS), which began in earnest in 2007 with publication of the landmark Wellcome Trust Case Control Consortium study of seven common diseases (PMIC2719288) and a trio of […]
Our second annual symposium featured members of the Henrietta Lacks family Shirley Lacks and Veronica (Robinson) Spencer. Ms. Lacks is the sister-in-law of the late Henrietta Lacks, and she was good friends with Henrietta’s daughter Deborah. Veronica (Robinson) Spencer is the great-granddaughter of Henrietta Lacks. The Lacks family story has become and continues to be […]
We have now organized two symposia focusing on big data and precision medicine topics with a third one in the works focusing on measuring exposures. In an effort to sustain the dialog initiated by each of these events, we are hosting a blog on this website. This blog will feature short opinion pieces and articles […]
In biomedical research, “precision medicine” is the buzz-word or phrase du jour permeating the latest conference abstracts, manuscripts, and grant proposals. Precision medicine is broadly defined as using a data-driven approach to offer tailored treatments or prevention strategies to patients. The recent popularity of the precision medicine term is likely due to the 2015 White […]
Hi Dana! Testing…