Mind the Gap: Complications in returning data to study participants
People who participate in genetic research increasingly tell researchers that they want all of their genetic data back. But many of these participants do not have the data management infrastructure or analytical tools to interpret this information. And while third party companies eagerly offer to interpret results, they are unregulated and may offer incomplete or […]
Presentation: Returning genetic data: Farren Briggs, PhD, ScM
Farren Briggs, PhD ScM, recently presented on the challenges of returning genetic data to individual research participants. In his presentation, Dr. Briggs cautioned his colleagues about even making the most general of assumptions regarding their research participants, including their access to the internet and computing infrastructure, and their digital literacy. This is compounded by the […]
Jonathan Haines, PhD, and Will Bush, PhD, Part of International Collaboration that Makes Landmark Breakthroughs
An international study analyzing data from more than 94,000 people identified five new genes related to Alzheimer’s disease. The study also supports developing evidence that groups of genes associated with specific biological processes serve as genetic “hubs” that play an important role in the disease process. Funded in part by the National Institute on Aging […]